E P I G R A M

Epilepsy Association of Calgary 4112 - 4 Street NW, Calgary AB T2K 1A2

Website: www.epilepsycalgary.com Email: epilepsy.calgary@telusplanet.net

Phone (403) 230-2764 Toll free 1-866-EPILEPSY

Fax (403) 230-5766

Our Mission: To support independence, quality of life, and

community participation for people with and affected by epilepsy.

Volume 7 Issue 3 SEPTEMBER 2002

Epilepsy Education Month 2002

he Epilepsy Association of Calgary will involve itself during the monthof November in activities aimed to increase public awareness of the Epilepsy Associationof Calgary (EAC) and its services, and to increase public knowledge of epilepsy andseizure first aid. Our special focus will be on careers and employment. Children from thecommunity will deliver the theme of this year’s poster:

Epilepsy - A seizure lasts a moment,

dreams last a lifetime.

If you CAN dream it, you can become it.

This message, we hope, will help encourage those with epilepsy to letneither epilepsy nor attitudes prevent them from reaching their potentials. The posterwill be sent to schools, organizations, and businesses and will invite the recipients todisplay the poster and learn more about the condition of epilepsy. In addition to theposter, keep an eye out for an informational TV ad on "Absence Seizures in theSchool". This 30-second video was produced by the Canadian Epilepsy Alliance, ofwhich the Epilepsy Association of Calgary is a proud member.

 

FAREWELL TO

DEREK MORRIS

As many of you will have heard, Derek Morris was recently traded by the Calgary Flamesand will now be playing for Colorado. EAC was naturally saddened to get this news sinceDerek had been a great support to our organization. The connection was a very personal onesince Derek grew up with epilepsy and knows first hand the challenges and fearsexperienced by a young person living with epilepsy. Obviously, Derek's departure willleave a huge void in Calgary and certainly for epilepsy awareness. Derek was to figureprominently in Epilepsy Education Month in November – in particular, he was to befeatured in our poster along with a group of our children representing their dreams forthe future. The planned message:

As a Child I Dreamed

of a Career in the NHL

A Seizure Lasts a Moment – Dreams Last a Lifetime

You Can't Score if You

Don't Take a Shot!

The poster will go ahead without Derek. We have a group of eager children who willstill participate, and we know the poster will still be great! We will all miss Derek'sparticipation. We were very excited at the positive impact the poster would have had.However, we still think the message is positive and important. The poster will beavailable shortly and you are welcome to request copies to display in your community.

On the plus side, Derek can still be a very positive force in creating epilepsyawareness from anywhere, and we're certain this is a message he will continue to deliver.As well, we are told that the trade is a positive one for Derek, and one that he is quiteexcited about. Thus, we extend our congratulations and best wishes to him and his familyon this new journey!

The awareness night with the Calgary Flames will go ahead as planned on November 21,2002 thanks to the support of the Calgary Flames. Additionally, the Flames are donating apair of tickets for a raffle on November 22 at the Red Deer Rebels game. It's alsonoteworthy that we were contacted by the Flames before the news of Derek's trade hit themedia – we thought that was a class act! Some of our participants will get tickets tothe November 21 game in Calgary and will be able to cheer our team on in style. PamCampbell, our Public Education Coordinator, will have details shortly, although you arewelcome to call her at 230-2764 if you want to get on the waiting list.

We plan to create a card that we will have at the games, at our upcoming comedy event,and at our office. If you can't get to one of these locations to sign the card, pleasefeel free to send a letter and we'll include it. The deadline is November 25th.We would like to collect messages from as many of you as possible to thank Derek for hiscontribution in raising epilepsy awareness in Calgary, for the many Flames and Hitman gametickets he provided to families and young people affected by epilepsy, and to wish himwell. Thank you Derek! Good luck in Colorado!

 

November is

Epilepsy Education Month!

Pass it on!

 

CALLING 1-866-EPILEPSY

If you live outside the Calgary and Red Deer local calling areas, you can nowreach us at no cost to yourself at our toll free number to ensure that support,information, and answers to your questions are just a telephone away.

If you live within the Calgary calling area, please call us at 230-2764.

If you live within the Red Deer calling area, please call us at 358-3358.

EPILEPSY AND EMPLOYMENT

Source: Canadian Epilepsy Alliance

Let’s face it. We all need to be productive, to give life meaning, feed ourspirits, and maintain good health. True, we often define "productive" work as"paid" work, and we certainly need an income to live well. However, activitieslike volunteering, parenting, or pursuing a hobby bring meaning and value to our lives,although they do not come with a paycheck. Not only are these activitiessatisfying—they can sometimes lead to employment.

We know that workers with epilepsy can face obstacles: negative and uninformedattitudes, outright discrimination, sometimes unnecessary driving requirements, andunder-utilization of their skills. The unemployment rate of people with epilepsy is doublethat of the general population, and 40% are under-employed. Employers often worry aboutproductivity, absenteeism, liability, job performance, reaction of customers orco-workers, accommodation costs and workplace safety.

Though many with epilepsy still face obstacles in seeking employment, attitudes arechanging, and some people are finding creative alternatives to the traditional 9 to 5 job.If you believe in yourself and pursue your goals, success can be yours.

Your Rights as a Worker

If you have epilepsy, it is important to know your employment rights. Both the Canadianand provincial/territorial Human Rights Codes prohibit discrimination in employmentbecause of disabilities such as epilepsy. This means that an employer cannot refuse tohire you, nor decide to fire you, simply because you have epilepsy.

Frequently Asked Questions

What jobs can I not do because of my epilepsy?

People with epilepsy can work in almost any occupation. Restrictions are constantlybeing modified as medications improve the control of seizures. It is a good idea to findout if there are specific restrictions on the work you want to do.

Sometimes, safety concerns may limit the opportunities for people with epilepsy,depending on how well seizures are controlled. Safety maybe of primary concern in publictransportation, trades involving dangerous machinery, police work, the military, or firefighting.

Can an employer ask about epilepsy when I apply for a job?

Human Rights Codes make it illegal in some provinces for an employer to ask medicalquestions on an application form. You can refuse to answer it. In other provinces, thequestion can be asked, but the employer cannot refuse to hire for that reason. During aninterview, the employer is allowed to ask you whether you have any medical condition thatwould interfere with your ability to perform the job. Contact the Human Rights Commissionin your province for specifics.

Can an employer refuse to hire me because I have epilepsy?

Only if it would be dangerous for you to work with certain machinery necessary toperform the essential functions of the job, and this risk cannot be sufficiently reducedthrough a reasonable accommodation.

Accommodating Epilepsy in the Workplace

An employer must, in most cases, make every reasonable effort to adjust the
duties or conditions of work to meet the constraints of the epilepsy—this is called"accommodation". The Canadian Human Rights Code as well as some provincial codesstate that employers must accommodate people with disabilities UNLESS thedisability interferes with performing the essential duties of the job OR suchaccommodation causes the employer "undue hardship".

Workplace accommodations for epilepsy are inexpensive, easy to make, and only require alittle creativity and flexibility. Here is a list of examples ofreasonable accommodation for people with epilepsy.

• Job restructuring: redistributing nonessential, marginal job functions, such as driving, to other employees.

• In a case of photosensitive epilepsy, replacing flickering light in an employee’s work area and/or adjusting the display             intensity on their computer if these trigger seizures.            

• Installing a safety shield around a piece of machinery.

• Installing a piece of carpet to cover a concrete floor in the employee’s work area.

• Putting work instructions in writing (rather than just giving them orally) if memory difficulties/deficits are a side effect of the          seizure disorder or anti-epileptic medication.

• Scheduling consistent work shifts if seizure activity is made worse by inconsistent sleep patterns.

• Allowing an employee who experiences fatigue as a side effect of medication the place and opportunity to take frequent rest           breaks.

• Allowing an employee to take time off to recover after a seizure.

For help with accommodation, contact the job accommodation specialist at the CanadianCouncil on Rehabilitation and Work (CCRW). Phone 1-800-664-0925, or 416-260-3060. JobAccommodation Network is available to help online through their interactive service. Logonto: www.jan.wvu.edu

UPCOMING EVENTS

4112 - 4 Street NW

Epilepsy Association of Calgary

Adult Support and Information Meetings

7:00 - 9:00 p.m.

Tuesdays

October 15

November 12

Parent Support Group

1:00 - 3:00 p.m.

Saturday

November 16

Drama and Theatre for Teens

12:00 noon - 2:30 p.m.

Saturday

October 19

Workshops

7:00 - 9:00 p.m.

Tuesday, October 29

Epilepsy and Depression

Tuesday, December 3

Epilepsy and Memory

For more information contact Janice:

Email - epilepsy.jshaw@telusplanet.net

Phone: 230-2764

Epilepsy and Depression Workshop

hile most of us experience depression from time to time throughout our lives, thoseliving with epilepsy may experience symptoms of depression more acutely than others. Thisworkshop will explore what depression is and provide tools and strategies on how to copewith it.

Epilepsy and Memory Workshop

hat time is my appointment? Did I take my medication? When is my report due? I can'tseem to remember! Any of this sound familiar? Many people struggle to remember key dates,times, and activities—often complicated by hectic schedules and multiple demands.Those with epilepsy face additional challenges with memory, such as those caused byseizure activity or effects of medication(s). This session will explore some of thechallenges and provide some tips to overcoming problems with memory that many people withepilepsy experience. You mark the date in your calendars, and I'll remember to bring therefreshments (or will I?).

"True friendship is like sound health; the value of it is seldom known untilit is lost."

Charles Caleb Colton

CALLING ALL JUNIOR JOKERS

Teen Theatre with

a Comedy Twist

e are pleased to announce that Derek Wilken of the Cheers Project will facilitate ournext Teen Theatre Session which will be held on Saturday, October 19, 2002 from12:00 noon to 2:30 p.m. at the Epilepsy Association of Calgary. In this specialsession of Teen Theatre, participants will learn some basic skills of comedy and how theycan use humor to better cope with epilepsy, growing up, and life in general. No one saidlife would be easy but anyone, especially young people, can learn to identify the humor intheir situations as a method of learning to cope. Laughing is allowedand absolutely encouraged in this class!

If you would like to participate in the Junior Jokers Teen Theatre witha Comedy Twist on October 19th, please call Janice as soon as possible at 230-2764 toconfirm your attendance.

LAUGHING ALLOWED

HUMOR CORNER

A patient said to his wife, "I'd like to have a watch that tells me time."The wife said, "Don't you have a watch that tells time?" "No," saidthe patient, "I have to look at it!"

"Doctor, I can't stop behaving like a dog." "How long have you beenacting this way?" "Since I was a puppy."

An honest seven-year-old admitted to her parents that Billy Brown had kissed her afterclass. "How did that happen?" gasped her mother. "It wasn't easy,"admitted the young lady, "but three girls helped me catch him."

A three-year-old went with his dad to see a litter of kittens. On returning home, hebreathlessly informed his mother that there were two boy kittens and two girls kittens."How did you know?" his mother asked. "Daddy picked them up and lookedunderneath," he replied. "I think it's printed on the bottom."

Comedy Show

Tickets now on sale for the performance on Sunday, November 17, 2002 at6:30 p.m. at the Blackfoot Inn

Mark your calendars! Our third humor course is now underway and we have a lively andeager group of participants who are dying to enlighten, entertain, and amuse you withtheir newly acquired perspectives on epilepsy and their comedic skills.

Having epilepsy is no joke, but the show will be brimming with them. Join us as weeducate, entertain, amuse, and help "spot" epilepsy in a whole new light.

A ticket order form is included in this newsletter or you may call us at 230-2764 toreserve your ticket(s). Proceeds from this event help support programming at EAC. Whereelse would you have this much fun, enjoy a fabulous dessert buffet, and support a greatcause?

Ticket Sponsors Needed - If you are unable to attend, but would like to donate tickets to someone who would otherwise be unable to, please let us know.

Donated Tickets - If you would like to attend, but cannot afford a ticket, please call us and we'll put your name on a waiting list for tickets. These will be distributed in the order of names on the waiting list as they become available.

This is an event worth sharing and we would love to see every seat in the house full(our performers love the encouragement). For your information our volunteers will bephoning in the last part of October and early November in case you've forgotten topurchase your ticket.

They can take credit card orders by phone. Rest assured, you are under no obligationand we respect your decision either way. However, please know that the callers arevolunteers who are simply promoting this event on behalf of EAC. Any questions or concernscan be directed to our office.

Volunteers will be needed for Epilepsy Education Month activities as well as for the Epilepsy- Out of the Shadows…Into the Spotlight Comedy Show. Please phone Pam at 230-2764for more information.

VOLUNTEER

OPPORTUNITIES

Revenue Generation

Public Education Speaker

Penguin Actor or Guide

Educational Displays

Special Events

November - Epilepsy

Education Month

"To the world you may be one person, but to one person you may be the world."

 

To all the individuals, businesses and service clubs for the donationsreceived

July to September 2002

at the Calgary Office

 

Telephone Support Network

To facilitate a link between participants, the Epilepsy Association ofCalgary provides a Telephone Support Network Program that matches individuals with thesame or similar situation.

For more information, please phone Janice at 230-2764 or email atepilepsy.jshaw@telusplanet.net

 

Donor Choice Program

hanks to the United Way of Calgary donors who have directed their gifts to the EpilepsyAssociation of Calgary. In July, we received a cheque from the United Way of Calgary for$1,273.15.

2002 United Way Campaign

Calgary and Red Deer

lease support the United Way during their annual campaign. Donations entrusted to theUnited Way are directed back into community-based programs and services to address theneeds at both the community and individual level. It takes countless volunteers,workplaces and donors to support thousands of people when they are most in need. Let'smake United Way's work in the community another success this year.

United Way

Of CENTRAL ALBERTA

EPILEPSY ASSOCIATION OF CALGARY - CENTRAL ALBERTA

e would like to extend a huge welcome to Krista Anderson, our new Program Coordinatorat our Central Alberta Office in Red Deer. Krista began her job with us in mid September,and we are certain she will bring a wealth of skill, knowledge and enthusiasm with her. Ifshe hasn't contacted you already, she will be in touch with those who have indicated adesire to be contacted about support groups, information sessions, and other activities.Please phone 358-3358, toll free at 1-866-EPILEPSY, or email epilca@telus.net

We would also like to extend our thanks and best wishes to Sharon Dixon who left us inJuly.

For the donations received

July to September for our

Central Alberta Office

Thank you!

Support Group Meetings

Red Deer Office

Room 204B, 4805 - 48 Street

7:00 - 9:00 p.m.

At our office or down the hall (directions will be posted)

Saturday, October 19

Thursday, November 21

Thursday, December 12

Central Alberta

Get Away Raffle

Tickets for our upcoming raffle will be available shortly. We will be looking forenthusiastic volunteers to help us sell the tickets. Tickets are only $1.00 each andproceeds from ticket sales will be used to help support our services in Central Albertaand help support the United Way of Central Alberta. Our services in Central Alberta wouldnot be available without their funding so we hope you'll give us ahand in supporting two great causes. Please call Krista at 358-3358 if you can help selltickets.

Prizes include:

A getaway for two to any WestJet destination in Canada (some restrictions apply)

One night deluxe accommodation and dinner theatre tickets for two at the Black Knight Inn in Red Deer

A delightful evening for two at the Rosebud Theatre (some restrictions apply)

 

Everyone hears what you say.

Friends listen to what you say.

Best friends listen to what you don't say.

The Epilepsy Association of Calgary has meeting space available at

4112 - 4 Street NW

Reasonable rates and flexible access.

Rates:

Full day $100.00

Half day or evening $50.00

We can accommodate groups of 5 - 35 people.

Our meeting space includes:

separate kitchen

washrooms

TV/VCR

whiteboard

overhead projector

flip chart stand

tables and chairs

Parking available on-site only evenings and weekends

Nearby street parking

during the day from

Monday to Friday.

Please phone Lynda at 230-2764 for more information.

The Epilepsy Association of Calgary

Annual Christmas Party (Calgary Office) will be held on

Wednesday, the 4th of December.

More details to follow.

 

STAFF - Calgary Office

Kathy Fyfe,

Executive Director

epilepsy.kfyfe@telusplanet.net

Janice Shaw,

Support Coordinator

epilepsy.jshaw@telusplanet.net

Pam Campbell,

Public Education Coordinator

epilepsy.pcampbell@telusplanet.net

 

Lois Currie,

Administrative Coordinator

epilepsy.lcurrie@telusplanet.net

Lynda Hussey,

Administrative Assistant

epilepsy.calgary@telusplanet.net

 

Volunteer Office Assistants

Martin Blanchard

Victoria Worobetz

 

Central Alberta Office

Red Deer Office

204b, 4805 - 48 Street

Phone (403) 358-3358

Krista Anderson

Program Coordinator

epilca@telus.net

 

Funded by:

Donations

Memberships

Fundraising Events

United Way of Calgary & Area

United Way of Central Alberta

 

BOARD OF DIRECTORS

2002-2003

George Jacob,

President

Marcel Ouimet,

Vice President

Julia Robichaud,

Secretary

Pat Frank,

Treasurer

Dan Pyper,

Past President

Kathryn Robson,

Director

Ken Davidson,

Director

Honorary Director

Derek Morris

"To the world you may be one person, but to one person you may be the world."

Unknown

Websites

for Job Search

and Labour Market Research

www.adm.uwaterloo.ca/infocecs/CRC/manuel

self-assessment tool

www.workink.org

employment counselling

www.wiredhired.com

career links for adults seeking work, training information, occupations, and job searchstrategies

www.skillnet.ca

www.canadajobs.com

www.charityvillage.com

www.ele-spe.org

www.sern.net

www.volunteer.ca

The City of Calgary

Office of the Mayor

Proclamation

For the past 47 years the Epilepsy Association of Calgary has providedprograms for those whose lives are affected by epilepsy. Epilepsy is the most commonneurological condition in the world and it is also one of the most misunderstood. Epilepsyshould not prevent those who live with it from pursuing their dreams.

Epilepsy Education Month is a campaign to help Calgarians learn aboutepilepsy and to help support those affected with epilepsy to improve the quality of theirlives. The theme this year year is "Epilepsy - A Seizure lasts a moment, dreams lasta lifetime. If you can dream it, you can become it."

Whereas: Epilepsy is a condition of the central nervous system,characterized by the tendency to have seizures;

Whereas: Epilepsy affects approx-imately 2% of the population - inCalgary this represents close to 18,000 people;

Whereas: The Epilepsy Association of Calgary is steadfast in itsresolve to replace misinformation and fear about epilepsy with facts and understanding.

On behalf of City Council and the citizens of Calgary, I herebyproclaim the month of November 2002:

"EPILEPSY EDUCATION MONTH"

Dave Bronconnier

Mayor

MEMBER/DONOR FORM

___________________________

Name

___________________________

Address

___________________________

City Prov Postal Code

___________________________

Home Phone Work Phone

Yes, I want to participate!

Please indicate by a checkmark:

Epilepsy Association of Calgary

(Calgary Office)

Epilepsy Association of Calgary

- Central Alberta (Red Deer Office)

Annual Membership………. $ 20.00

(January to December 2003)

Life Membership…………. $200.00

Donation amount …………..$_____

Total enclosed……..$_____

Cheque___ Money Order___

Visa___ MasterCard___

___________________________

Credit card number

__________

Expiry Date

___________________________

Cardholder signature

 

A tax-deductible receipt will be issued for charitable

registration number

11890 0778 RR001

My email address is:

______________________________

Please contact me at my email address about upcoming events and otherinformation.

NEWSLETTER DISCLAIMER

Material contained in this newsletter concerning epilepsy, research,treatment and patient experiences is solely for information purposes. Each individual'sexperiences of epilepsy are different. Please consult your physician for medical advice.