Together, we can
Help more families
live well with
Femila is the mother Harry, an 11-year-old battling epilepsy for most of his young life.
She reached out to us when his medical team was trying new treatments to better manage his epilepsy after a recent relapse. Because everyone’s epilepsy is different, the side-effects of new medications can be very difficult to manage.
“It’s hard to explain the devastation in your heart when a combination of drugs is not working and the new set of meds causes medication-induced side-effects.”Femila, Mother of Harry
We helped Femila set her family’s goal to living better with epilepsy and started building a plan. As primary caregiver, it was important for her to be involved in providing her son with the best care possible. For this, she needed support from others with a shared lived experience.
“The first support I received from Epilepsy Calgary was the Caregiver Support Group. After attending the first meeting, I felt an ease in my chest.”Femila, Support Group Participant
With the support from our generous donors, we offer families and young adults epilepsy education, one-on-one and group counselling from a registered social worker, and skills-based programs. In fact, demand for our services has never been greater.
Together, we’re helping more families like Femila and Harry get the specialized epilepsy care they need to thrive. For Femila, this meant she was able to access our new Peer2Peer Program – one of the six evidence-based programs available to more than 30,000 people living in Calgary and Sothern Alberta with an epilepsy diagnosis, and their families.
“Although my battle with caring for a child with epilepsy is always there and it sometimes takes a toll on my physical and mental health, I read somewhere, “Help yourself by helping others”. So, I signed up for the Peer2Peer Program to be a mentor and I have been paired with this amazing mom going through something similar to us. Only parents like us can understand the connection when you meet someone who understands the vocabulary of epilepsy.”Femila, Volunteer Mentor
This year, to meet the unique needs of our growing community, we’re launching new pediatric community-based programs and supports, and presenting Epilepsy 101 education sessions in more schools, day-cares, and workplaces than ever before!
We need your support to continue to offer our vital programs, services, and advocacy free of charge and with no waitlists. Your gift today will help us continue to provide high quality, front-line epilepsy support to help more families like Femila and Harry improve their quality of life, and live well with epilepsy.